Artwork was created during artSpeaks sessions and provided by the William Proudford Sickle Cell Foundation Inc.
Patient artwork may not be used without permission.
The artSPEAKS Program encourages sickle cell kids of all ages and their families to share their creative talents with the world. Participants create powerful and compelling works that express the pain, struggles, triumphs and hopes of living with sickle cell disease and trait. artSPEAKS is a collaboration between the WEPSCF and Art with a Heart.
Who can participate in an artSPEAKS session?
Children with sickle cell disease or trait
Adults with sickle cell disease or trait and their children
Family members, especially siblings, are encouraged to participate.
Where have artSPEAKS sessions been held?
Nemours duPont Hospital for Children, Wilmington, Delaware
Johns Hopkins Hospital, Baltimore, Maryland
University of Maryland Hospital, Baltimore, Maryland
Sinai Hospital, Baltimore, Maryland
Georgetown Hospital, Washington, D.C.
Children’s National Health System, Washington, D.C.
Howard University Hospital, Washington, D.C.
Stomp Out Sickle Cell Annual Walkathon, Washington, D.C.
The Sickle Cell Society’s Emmanuel Amuta Poetry Award is for creative young people aged 10-15 years who are living with sickle cell.
The following patient narratives are made available through the Sickle Cell Information Center. Scinfo.org is a collaboration between members of the Emory Center for Digital Scholarship, the Aflac Cancer and Blood Disorders Center of Children’s Healthcare of Atlanta, the Emory School of Medicine, and the Comprehensive Sickle Cell Center at Grady Health System, Atlanta, Georgia.
For more patient stories from around the globe, visit Not Alone With Sickle Cell and Generation S.
William Bratton Fights Sickle Cell Anemia as He Battles for Playing Time for the Rockets
The Power of Information: A Letter from Michael Cobb
Managing the Pain: Inez C. Hardin
Good Medical Care and Strong Family Support Can Go a Long Way: Letter from Debbie Thomas
The Psychological Impact of Sickle Cell: Fola Ogunnowo
Monica’s Struggle with Pain Medication
To gather momentum in the fight against sickle cell disease by fostering connections among community-based organizations in the Northeast region.
Support overall SiNERGe project goals of identifying and connecting with providers who serve sickle cell patients in the Northeast region. Ongoing collaboration among community-based organizations (CBOs) in the region. Provide access to capacity-building expertise and resources for CBOs. Work in collaboration with other initiatives (e.g. newborn screening grant) in order to provide comprehensive support to patients and providers.
Community-Based Organizations (CBOs) in the Northeast
- Citizens for Quality Sickle Cell Care*
- Sickle Cell Association of Delaware
District of Columbia
- Faces of Our Children
- Sickle Cell Association of the National Capital Area Inc.
- Armstead-Barnhill Foundation for Sickle Cell Anemia
- Sickle Cell Association of Harford and Cecil Counties and the Eastern Shore*
- Christopher Gipson Sickle Cell Moyamoya Foundation
- Maryland Sickle Cell Disease Association*
- William E. Proudford Sickle Cell Fund Inc.
- Greater Boston Sickle Cell Disease Association*
- Sickle Cell Association of New Jersey*
- Candice’s Sickle Cell Fund^
- New York Sickle Cell Advocacy Network (formerly QSCAN)*
- Sickle Cell Advocates of Rochester^
- Sickle Cell Awareness Foundation Corp International
- Sickle Cell Thalassemia Patients Network*
- Westchester Sickle Cell Advocacy Network
- Children’s Sickle Cell Foundation Inc.*#
- SCDAA – Philadelphia/Delaware Valley Chapter*#
- South Central Pennsylvania Sickle Cell Council*#
- Anemia Falciforme Sickle Cell Disease en Puerto Rico
- Life and Family Foundation Richmond (formerly Living with Sickle Cell RVA)
- Sickle Cell Association Inc.*
*Chapters of the Sickle Cell Disease Association of America (SCDAA)
#Members of the Pennsylvania Sickle Cell Disease Providers Network (PASCDPN)
^Affiliates of Sickle Cell Thalassemia Patients Network (SCTPN)
Breaking down barriers for patients with sickle cell disease
Sickle Cell Disease in Africa Fact Sheet Download (PDF 135.08 KB)
Information Guide: Clinical Studies. Download ( PDF )